How could there be anything but sunshine and lollipops for this precious little pink bunny rabbit?
It’s hard to imagine that any little baby should be sick in any way, but they sometimes are, and some of those illnesses are harder to handle than others.
This is 9 month old Emily Grace Rodgers, of Cheatham County. She was born with a chronic genetic blood disorder called Beta Thalassemia Major, or Cooley’s Anemia. All of that means that the disease does not allow her tiny body to produce red blood cells like it should. In order to survive she requires blood transfusions every 4 – 5 weeks in order to survive. Of course, red blood also contains iron, and over time it adds up to too much iron in her tiny body which can cause organ damage and eventually, organ failure. Emily Grace will have to begin a daily iron chelation therapy to remove the excess iron from her body to keep this from happening.
There is so much that needs to be learned so that Emily Grace can grow and thrive, and to that end her family and friends are participating in the Cooley’s Care Walk in her honor to raise awareness and funds for research. The walk is scheduled for May 4th at 2:30 at Rock Springs Free Will Baptist Church on Hamble Road in Charlotte. You can find out more about Cooley’s Anemia and the Walk, and donate to Emily Grace’s team at http://www.thalassemia.org/get-involved/care-walk/
Other upcoming events include:
• There’s a bake sale at the Wal-Mart in Ashland City on April 5th, starting at 7:30 a.m.
• A spaghetti supper is set for April 12 beginning at 5 p.m. at the Jackson Chapel Community Center on Highway 49 in Charlotte.
• A bake sale is set for April 25 beginning at 7:30 a.m. at First Federal Bank on the square in Charlotte.
• There’s a blood drive at Rock Springs Free Will Baptist Church on May 26th from 9am-3pm.
Any donation is helpful and greatly appreciated. Please make checks payable to Cooley’s Anemia Foundation and mail to Jennifer Rodgers, P.O, Box 387, Ashland City, TN 37015.
For more information about making a donation or any of the events, contact Jennifer Rodgers at 931-801-3448 or Betty Nollner at 615-587-8857.